© 2024 Connecticut Public

FCC Public Inspection Files:
WEDH · WEDN · WEDW · WEDY · WNPR
WPKT · WRLI-FM · WEDW-FM · Public Files Contact
ATSC 3.0 FAQ
Play Live Radio
Next Up:
0:00
0:00
0:00 0:00
Available On Air Stations

Charlie Gard To Be Taken To Hospice Unless Deal Reached

STEVE INSKEEP, HOST:

Some other news. A British court has made a final decision about the life of Charlie Gard. A judge says the critically ill infant must go off life support and be transferred to a hospice. NPR's Joanna Kakissis reports his parents had hoped to bring him home.

JOANNA KAKISSIS, BYLINE: Charlie Gard suffers from a rare genetic disorder that has left him brain damaged and unable to breathe without a respirator. His parents spent months in court trying to discharge him from Great Ormond Street Hospital in London. His mother, Connie Yates, told the BBC earlier this year that they wanted to take him to the United States for an experimental treatment.

(SOUNDBITE OF ARCHIVED RECORDING)

CONNIE YATES: If we don't get this opportunity, he's going to die. Even if it doesn't work, which I think it will, we know that we've done everything.

KAKISSIS: But Charlie's doctor said this experimental therapy, which has not undergone clinical trials, likely would not benefit him and might even harm him. British law allows doctors to override the wishes of parents in treatment decisions if it's in the child's best interest. His parents dropped their legal fight last week. His father, Chris Gard, was in tears as he spoke to reporters.

(SOUNDBITE OF ARCHIVED RECORDING)

CHRIS GARD: We are now going to spend our last precious moments with our son, Charlie, who unfortunately won't make his first birthday in just under two-weeks' time.

KAKISSIS: Charlie's parents and doctors are now trying to work out arrangement for care at a hospice. If they cannot agree, a judge ruled that the baby must be taken off life support immediately. Joanna Kakissis, NPR News, London.

(SOUNDBITE OF LUDOVICO EINAUDI'S "FOUR DIMENSIONS") Transcript provided by NPR, Copyright NPR.

Joanna Kakissis is a foreign correspondent based in Kyiv, Ukraine, where she reports poignant stories of a conflict that has upended millions of lives, affected global energy and food supplies and pitted NATO against Russia.

Stand up for civility

This news story is funded in large part by Connecticut Public’s Members — listeners, viewers, and readers like you who value fact-based journalism and trustworthy information.

We hope their support inspires you to donate so that we can continue telling stories that inform, educate, and inspire you and your neighbors. As a community-supported public media service, Connecticut Public has relied on donor support for more than 50 years.

Your donation today will allow us to continue this work on your behalf. Give today at any amount and join the 50,000 members who are building a better—and more civil—Connecticut to live, work, and play.